Submitted by DonnaH on Wed, 01/27/2010 - 11:43
From Wikipedia:
Inflammatory breast cancer is an especially aggressive type of breast cancer that can occur in women of any age (and, although extremely rarely, in men). It gets its name from the red, swollen, inflamed appearance of the breast. It is unique because it often does not present with a lump and therefore often is not detected by mammography or ultrasound. IBC only makes up 1-6% of all breast cancer cases in the USA. IBC is usually diagnosed in younger women (average age of 57 years old). African-Americans are usually diagnosed at younger ages than Caucasian women, and also have a higher risk of getting IBC.
(On a personal note, if you are in need of a low cost mammogram and/or cervical exam (and I took advantage of this last fall since my income qualified me), please go here and to find a program available in your state.
http://apps.nccd.cdc.gov/cancercontacts/nbccedp/contacts.asp )
The American Cancer Society's look at this rare cancer
http://www.cancer.org/docroot/CRI/content/CRI_2_6X_Inflammatory_Breast_C...
The Mayo Clinic's site has run downs on the symptoms, diagnosis and some of treatment options for IBC.
http://www.mayoclinic.com/health/inflammatory-breast-cancer/DS00632
The National Cancer Insitute's Q&A on IBC. I'm also including a link to their breast cancer page.
http://www.cancer.gov/cancertopics/factsheet/Sites-Types/IBC
http://www.cancer.gov/breast/
Susan G. Komen is an extensive website well known for it's focus on breast cancer. In the search box, type in "inflammatory breast cancer" and that should take you to a page with a checkbox tree where you can explore various areas devoted to IBC including support groups, treatment, screening and diagnosis.
http://ww5.komen.org/
MedicineNet has a good bit of information available on this cancer.
http://www.medicinenet.com/inflammatory_breast_cancer/article.htm
MD Anderson is a good resource to utilize. They also have a link to IBC clinical trials on this page.
http://www.mdanderson.org/patient-and-cancer-information/cancer-informat...
Breastcancer.org is another excellent informational resource. You'll want to drill down in the links on the left hand side to get to all of the sections available (also with links)
http://www.breastcancer.org/symptoms/types/inflammatory/symptoms.jsp
Cancer.net is an oncologist approved resource with information provided by the American Society of Clinical Oncologists. Plan on spending time there and don't miss the "thumbnail" signs on the right that take you to even further information.
http://www.cancer.net/portal/site/patient/menuitem.00a3259e57e760d90d0bd...
(If for some reason this link doesn't work, go to www.cancer.net and type in "inflammatory breast cancer" in the search box.)
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Foundations, Blogs, Forums, Email lists, Videos
The Inflammatory Breast Cancer Foundation is a group of concerned citizens who came together with the hope of making a difference in the way Inflammatory Breast Cancer ( IBC ) is perceived by both the general public and the medical community.
http://www.eraseibc.com/index.html
Inflammatory Breast Cancer Research Foundation
The IBC Research Foundation is dedicated to researching the cause of Inflammatory Breast Cancer, IBC, an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. Inflammatory breast cancer requires immediate aggressive treatment with chemotherapy prior to surgery and is treated differently than more common types of breast cancer.
http://www.ibcresearch.org/
IBC Support has information about the disease available, as well as support group information and an email list.
http://www.ibcsupport.org/
The Inflammatory Breast Cancer Association is another group that provides specific information on this disease as well as support for
http://www.ibchelp.org/
Cancer Compass has a breast cancer message board available where you can read and participate in discussions.
http://www.cancercompass.com/message-board/cancers/breast-cancer/1,0,119...
The American Cancer Society has an active breast cancer message board available.
http://csn.cancer.org/forum/127
ACOR (Association of Cancer Online Resources) has a mailing list available off listserv
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=IBC&A=1
If blogging is what you'd like to do, Blog for a Cure hosts blogs written by people with all kinds of cancer. It's a good place to share and read.
http://www.blogforacure.com/frontend/weblogs/listing.php?type=Breast+Cancer
YouTube has many videos available from various sources. Type "inflammatory breast cancer" in the search box.
KOMO News Special Report: Inflammatory Breast Cancer
http://www.komonews.com/ibc/ (Has links to other stories/videos including a four part series.)
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Selections from Amazon
Some of these books are a discussion of breast cancer in general.
21st Century Ultimate Medical Guide to Inflammatory Breast Cancer - Authoritative, Practical Clinical Information for Physicians and Patients, Treatment Options (Two CD-ROM Set) (CD-ROM)
~ PM Medical Health News (Author)
21st Century Ultimate Medical Guide to Inflammatory Breast Cancer
The Handbook of Humor, Survivor Stories, Support, and Hope for people with Inflammatory Breast Cancer: You Are Not Alone (Paperback)
~ Dee Kantorowicz (Author)
The Handbook of Humor, Survivor Stories, Support, and Hope for people with Inflammatory Breast Cancer
HealthScouter Breast Cancer: Inflammatory Breast Cancer, Breast Cancer Stages, and Breast Cancer Treatment (HealthScouter Breast Cancer) (Paperback)
~ Kathy Wong (Editor)
HealthScouter Breast Cancer: Inflammatory Breast Cancer, Breast Cancer Stages, and Breast Cancer Treatment (HealthScouter Breast Cancer
100 Questions & Answers About Breast Cancer, 3rd Edition (100 Questions & Answers about . . .) (Paperback)
~ Zora K. Brown (Author), Karl Boatman (Author)
100 Questions & Answers About Breast Cancer
The Breast Cancer Book: What You Need to Know to Make Informed Decisions (Yale University Press Health & Wellness) (Paperback)
~ Ruth H. Grobstein
The Breast Cancer Book: What You Need to Know to Make Informed Decisions
I Am Not My Breast Cancer: Women Talk Openly About Love and Sex, Hair Loss and Weight Gain, Mothers and Daughters, and Being a Woman with Breast Cancer (Paperback)
~ Ruth Peltason (Author)
I Am Not My Breast Cancer
JUST a LUMP IN THE ROAD ...: Reflections of young breast cancer survivors (Paperback)
~ Debbie Leifert (Author), Gina Castronovo (Contributor), Jackie Ehrlich (Contributor), Cindy Goldberg (Contributor), Donna Palmisciano (Contributor), Tamara Brennan (Contributor)
JUST a LUMP IN THE ROAD
Breast Cancer Husband: How to Help Your Wife (and Yourself) during Diagnosis, Treatment and Beyond (Paperback)
~ Marc Silver
Breast Cancer Husband: How to Help Your Wife (and Yourself) during Diagnosis, Treatment and Beyond
Humor After the Tumor: One Woman's Look at Her Year With Breast Cancer (Paperback)
~ Patty Gelman(Author), Leslie Zemsky (Illustrator)
Humor After the Tumor
Breast Cancer Survival Manual, Fourth Edition: A Step-by-Step Guide for the Woman With Newly Diagnosed Breast Cancer (Paperback)
~ John Link
Breast Cancer Survival Manual
Be a Survivor: Your Guide to Breast Cancer Treatment (Paperback)
~ Vladimir Lange
Be a Survivor: Your Guide to Breast Cancer Treatment
Breast Cancer: Real Questions, Real Answers [Bargain Price] (Paperback)
~ David Chan
Breast Cancer: Real Questions, Real Answers
Stand by Her: A Breast Cancer Guide for Men (Paperback)
~ John W. Anderson
Stand by Her: A Breast Cancer Guide for Men
Chicken Soup for the Breast Cancer Survivor's Soul: Stories to Inspire, Support and Heal (Chicken Soup for the Soul) (Paperback)
~ Jack Canfield (Author), Mark Victor Hansen (Author), Mary Olsen Kelly (Author)
Chicken Soup for the Breast Cancer Survivor's Soul
Crazy Sexy Cancer Tips (Paperback)
~ Kris Carr
Crazy Sexy Cancer Tips
Thanks for the Mammogram!: Fighting Cancer with Faith, Hope and a Healthy Dose of Laughter (Paperback)
~ Laura Jensen, Walker (Author)
Thanks for the Mammogram!: Fighting Cancer with Faith, Hope and a Healthy Dose of Laughter
The Breast Cancer Survivor's Fitness Plan (Harvard Medical School Guides) [Bargain Price] (Paperback)
~ Carolyn M. Kaelin (Author), Francesca Coltrera (Author), Josie Gardiner (Author), Joy Prouty (Author)
The Breast Cancer Survivor's Fitness Plan
The Breast Reconstruction Guidebook, Second Edition (Paperback)
~ Kathy Steligo
The Breast Reconstruction Guidebook, Second Edition
