Submitted by DonnaH on Mon, 01/04/2010 - 09:35
Liver Cancer (Adult Primary)
From Wikipedia:
Cancers that start in the liver. This Spotlight will focus on Adult Primary Liver Cancer.
Hepatocellular carcinoma (HCC):
Patients who develop this cancer normally are in the younger population. These tumors also contain a variation that consists of the HCC and cholangiocarcinoma. The cells of the bile duct coexist next to the bile ducts that drain the bile produced by the hepatocytes of the liver. The cancers within the blood vessel cells within the liver are known has hemangioendotheliomas.
Hepatoblastoma: Most of these tumors form in the right lobe. Children primarily develop hepatoblastoma and the cancer cells can spread to other parts of the body.
Cholangiocarcinomas (bile duct cancers):
Cholangiocarcinomas account for 1 or 2 out of every 10 cases of liver cancer. These cancers start in the small tubes (called bile ducts) that carry bile to the gallbladder.
Angiosarcomas and hemangiosarcomas: These are rare forms of cancer that start in the blood vessels of the liver. These tumors grow quickly. Often by the time they are found they are too widespread to be removed. Treatment may help slow the disease, but most patients do not live more than a year after these cancers are found.
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The National Cancer Institute's very indepth look at liver cancer. This is a comprehensive site that brings a whole lot of information to the table including symptoms, treatment, literature and clinical trial information. I am also including a What You Need To Know link. Plan on spending some time here.
http://www.cancer.gov/cancertopics/types/liver/
http://www.cancer.gov/cancertopics/wyntk/liver
The Mayo Clinic looks at this disease.
http://www.mayoclinic.com/health/liver-cancer/DS00399
The American Cancer Society's page.
http://www.cancer.org/docroot/cri/cri_2x.asp
MD Anderson's overview (includes a link to their clinical trials.)
http://www.mdanderson.org/patient-and-cancer-information/cancer-informat...
OncoLink is associated with the University of Pennsylania and has up-to-date information available regarding this cancer. Be sure and look to the left of the page for links to more information.
http://www.oncolink.org/types/article.cfm?c=5&s=15&ss=113&id=9495
Oncolink also has Oncopilot, "This guide has been developed to give you suggestions on ways to make this time easier and to help you make the best decisions. It is divided into sections that mirror the typical path a person with a new diagnosis might take."
http://www.oncolink.org/oncopilot/
Medline Plus is associated with the National Institutes of Health and is another excellent source of information. Broken out into sections, you can find a lot of information here including treatment/management, latest journal/research information, clinical trial information and more.
http://www.nlm.nih.gov/medlineplus/livercancer.html
Merck also has a section devoted to the disease.
http://www.merck.com/mmhe/sec10/ch139/ch139e.html#sec10-ch139-ch139d-287
Cancer.net is an oncologist-approved information resource.
http://www.cancer.net/patient/Cancer+Types/Liver+Cancer
Medicinenet takes a very detailed look at this cancer.
http://www.medicinenet.com/liver_cancer/article.htm
http://www.medterms.com/script/main/art.asp?articlekey=18507
Oncology Channel is a great resource for many different kinds of cancer. The liver cancer site is here:
http://www.oncologychannel.com/hepatobiliary/index.shtml
Healthcommunities.com is the parent site. From their start page: Developed and monitored by board-certified physicians, oncologychannel provides comprehensive, trustworthy information about tumors, types of cancer (e.g., colon cancer, lung cancer, breast cancer), and cancer treatments, including chemotherapy. oncologychannel is a medical information website of Healthcommunities.com, Inc.
http://www.healthcommunities.com/
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Foundations, Blogs, Forums, Email lists, Videos
The American Liver Foundation
Our mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
http://www.liverfoundation.org/about/
Cancer Compass has an active liver cancer message board.
http://www.cancercompass.com/message-board/cancers/liver-cancer/1,0,119,...
The American Cancer Society has a liver cancer message board available.
http://csn.cancer.org/forum/143
ACOR (Association of Cancer Online Resources) has a small mailing list available off listserv
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=LIVER-ONC
The Oncology Channel is a good resource, and if you scroll down the page, you'll find links to stories from liver cancer survivors, as well as a link so you can submit your own story.
http://www.oncologychannel.com/hepatobiliary/index.shtml
Blog For a Cure has sections devoted to the various cancer types. There are two sections for liver cancer.
Liver And Intrahepatic Bile Duct Blogs
http://www.blogforacure.com/frontend/weblogs/listing.php?type=Liver+and+...
Liver Cancer Blogs
http://www.blogforacure.com/frontend/weblogs/listing.php?type=Liver+Cancer
On Top Of Cancer is a good resource for links to support groups (both in person and online), local area resources, radio programs and emotional coping sources.
http://www.ontopofcancer.org/liver_cancer_support_group.php#radio
Youtube is another source to look at. Type "liver cancer" in the search box to see a long list (over 1000) of available videos.
www.youtube.com
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Selections from Amazon:
100 Q&A About Liver Cancer, Second Edition (Paperback)
~ Ghassan Abou-Alfa (Author), Ronald DeMatteo (Author)
100 Q&A About Liver Cancer
100 Q&A About Liver Transplantation: A Lahey Clinic Guide (100 Questions & Answers about) (Paperback)
~ Fredric D. Gordon (Author)
100 Q&A About Liver Transplantation: A Lahey Clinic Guide
The Liver Book: A Comprehensive Guide to Diagnosis, Treatment, and Recovery (Paperback)
Sanjiv Chopra (Author)
The Liver Book: A Comprehensive Guide to Diagnosis, Treatment, and Recovery
The Cleveland Clinic Guide to Liver Disorders (Cleveland Clinic Guides) (Paperback)
~ Nizar Zein (Author), Kevin M Edwards (Author)
The Cleveland Clinic Guide to Liver Disorders
The Liver Disorders and Hepatitis Sourcebook (Sourcebooks) (Paperback)
~ Howard Worman (Author)
The Liver Book: A Comprehensive Guide to Diagnosis, Treatment, and Recovery
